BRITISH ASSOCIATION OF PAEDIATRIC SURGEONS

 

RESPONSE TO THE KENNEDY REPORT

 

“LEARNING FROM BRISTOL”

 

 

The BAPS welcomes this report, which is fair, balanced, and fulfils the terms of reference of the inquiry. The recommendations are sensible and lay out a timely blueprint for the future of the NHS. It is likely that the profession will cooperate fully with the introduction of these recommendations because there are clear direct benefits both to themselves and to their patients.

 

We welcome the emphasis given to Child Healthcare in the NHS. The events in Bristol have shown very clearly that needs of children must be given a high national priority; the death of as child can no longer be considered a cheap option. Further, the report has highlighted that standards of care in the smaller sub-specialities, such as paediatric cardiac surgery are as critically important as in the case of high volume services, for example hip replacement.

 

The Report covers events in the late 1980s and early 1990s and many of the recommendations have been identified already as part of current good practice. Others, which have no significant revenue consequences can be implemented without delay. Several recommendations require significant additional funding, for example, for audit and revalidation, and it is likely that these will be implemented in stages. They will remain ineffective unless the Government makes the necessary commitment.  If funding is not forthcoming, one of the Reports main objectives, namely to facilitate the identification and re-education of clinicians and units performing below standard, will fail because the process can not be undertaken appropriately. 

 

As things stand in the NHS, the events leading to this Report could happen again, and indeed may already be taking place. Implementation of these recommendations therefore is urgent.

 

Relationship with patients:

We welcome the patient-centred approach and the concept of working in partnership with patients.  Providing reliable and comprehensible information is fundamental to this relationship.

 

A kite marking system (recommendation 9) is commendable but there is no indication of how this should be achieved, and by whom. It is not realistic to expect that the Internet can be monitored.

 

A tape recording (10) may be a good idea in selected instances, but has significant implications in terms of time and resources, and there are legal implications relating to ownership and the need to retain copies.

 

Copying doctor’s letters to patients (17) is already done by some doctors when this is thought to be helpful to the patient.  Although most letters are factual, because of their professional nature there is a risk of their being misunderstood.  Further, the need for flexibility must be recognised because inevitably some letters will contain comments which are of clinical relevance but which are sensitive and could cause distress to patients.  In the absence of professional confidentiality, such comments may no longer be included in correspondence.

 

Consent (24) -The concept that consent is a process, supported by appropriate visual and audit information, is sensible.  Consent should be obtained by each specialty team providing a service, be it surgical, anaesthetic, radiological etc. 

 

Performance information (27) – in most specialties, outcome measures and standards are still lacking. This is in part due to failure to identify responsibility for co-ordinating the development of outcome measures, and failure to provide the necessary resources for this.

 

When things go wrong (33) – ideally, a candid relationship between clinician and patient should be taken for granted, but in some circumstances this may be threatened by fears of retribution.  A ‘no blame’ culture is fundamental to an honest relationship, and the proposal (37) for a review of the clinical negligence system is strongly supported.

 

Leadership in the NHS:

The concept of two over-arching organisations, the Council for Equality of Healthcare and the Council for Regulation of Health Professionals (39), both of which would be independent of Government, is a pragmatic move to coordinate the activities of a number of relevant organisations without government interference.  There is a concern that this new structure may increase the levels of bureaucratic control in the NHS, and may not necessarily sharpen performance.

 

The new NHS Leadership Centre would identify and train those with leadership potential (65). An effect of this may be to move from the current relatively egalitarian order amongst Consultants to a hierarchy within the Consultant body.

 

The recognition that clinicians filling managerial roles must be appropriately trained is long overdue (93).

 

Where there is a conflict of interest, for example where the performance of a Medical Director is in question, he/she must relinquish that post.

 

Competence

Development of new clinical skills (100) – the principal that a local research ethics committee should approve new invasive clinical procedures is sound, but the definition of “new and untried” could pose difficulties.  When does a modification of a surgical procedure become “new”?

 

We welcome recognition that the Royal College of Surgeons of England should take a lead role in the training of Surgeons (103).  However, the other Royal Colleges have a role in this, as do the SACs, JCHST, and the Intercollegiate Boards.

 

Provision must be made for developing and supporting re-training programmes for surgeons whose skills are found wanting.

 

Is there evidence to support curtailing surgical practice based on age (103)?

 

At undergraduate level, we are not clear about the perceived benefits of a common first year for all healthcare professions (75).

 

Discipline (104) – the recommendation that a more flexible approach be adopted towards the definition of misconduct, and the desirability of dealing with cases at local level, are welcome.  Methods of dealing with suspected misconduct must be reviewed, in particular the potentially devastating practice of suspension from duty while allegations are investigated. The assumption of ‘guilty until proved innocent’ which underpins the GMC’s approach to alleged misconduct is distressing for the innocent, who are permanently stigmatised, as the doctors at Alder Hey who were referred to the GMC in the aftermath of the Redfern Report have discovered.

 

Safety of care (106 -112) – We support the recommendations for identifying, reporting and managing sentinel events.  In particular we welcome the recognition that sentinel. events must be assessed in the context of the whole system and not focus on individuals. Revision of the current clinical negligence system (119) is fundamental to the success of the proposed reporting system and we agree that an alternative system for compensation should be sought and implemented.  This would require a massive change in attitude amongst both the medical profession and the legal profession. The emotive and negative media responses to adverse events in the NHS have a destructive effect on the Service as a whole, and recommendations for curbing this would be welcomed. 

 

Standards of Care:

We support recognition of NICE as an independent coordinating body (123) and again welcome recognition of the roles of the Royal Colleges and specialist associations in developing standards of care (124).  Most, if not all of the specialist associations have published standards of care relevant to their speciality; these should be submitted to NICE for approval. Continuing involvement of the medical profession in setting standards is essential, to ensure that the many influencing factors, which may vary across the country, are taken into account.

 

We support the concept of inspecting and validating Trusts (131) but this will have major resource and manpower implications, which have not been addressed.

 

We strongly agree that where only a small number of centres offer a specialist service, the requirements of quality and safety should prevail over ease of access (142).  The designation of so-called Supra-Regional Units must be based on performance and outcome measures and not their geographical situation.  Centres must be constantly monitored by the designating authority to ensure that their continuing status as a Supra-Regional Unit is justified.

 

Monitoring standards depends on robust clinical audit, which can only be carried out with appropriate support.  This requires resources that currently are not available and we welcome the recommendation that the necessary support for the audit process must be forthcoming (144).

 At national level CHI must ensure that resources are adequate and appropriately and effectively used. A system of incentives and penalties (152) may be required not only for Trusts but for clinical departments and individual health care professionals.

 

The inadequacies of the IT systems currently available in the NHS have long been a source of frustration, and the recommendation for investment in a world-class system is to be applauded (154).  However, it goes without saying that this will require a very significant investment on the part of the Government.

 

 

Children’s Services

We support the recommendations proposed for children’s services, in particular the National Service Framework for child healthcare (172).  The appointment of National Director for Children’s Healthcare Services (167) is a welcome development and the choice of the first Director has our support. 

 

 We strongly support the recommendation that children’s acute hospital services ideally should be located in a children’s hospital close to an acute general hospital (178). The Report does not distinguish between specialist paediatric surgery, which is provided in specialist centres, and general paediatric surgery provided by appropriately trained general surgeons at DGHs.  We presume that the model proposed above applies to specialist services for children. District General Hospitals also provide acute care for children.  Whilst a separate children’s hospital may not be appropriate at District level, nonetheless the facilities for children, notably the wards and day care unit, should be separate from those for adults, and staffed by qualified children’s nurses.

 

The delivery of healthcare for children on split-sites, rightly recognised in the Report as a cause of poor performance, is all too frequent and occurs in different forms. A range of specialist paediatric surgical services may be provided by the same staff at more than one site in the same geographical area, or a single specialty hospital may provide a service for adults and children. Neither of these is acceptable. In addition, a split-site service frequently is found where the main neonatal unit is based in a maternity hospital some distance from the specialist children’s hospital.  In these circumstances, continuity of care of surgical neonates in the neonatal unit may be compromised. Wherever possible, neonatal and maternity services should be located as near as possible to a children’s hospital.

 

The amalgamation of children’s acute and community services in a geographical area is a positive way forward (180).  An example of this in the United Kingdom is the Royal Liverpool Children’s NHS Trust, which combines the Alder Hey Hospital and Children’s Community Services.

 

The recommendation (186) that all surgeons who operate on children must obtain a recognised professional qualification in the care of children requires clarification.  For specialist paediatric surgery the pathway is clear, with the Intercollegiate Specialty Examination the relevant professional qualification.  For general paediatric surgery no specific qualification in paediatric surgery currently exists. This has been recognised by the SAC for General Surgery. The recently revised curriculum for general surgery incorporates general paediatric surgery, but there are still hurdles to overcome in ensuring that the assessment process within general surgery embraces this component of the curriculum.  This is a matter for all the Royal Surgical Colleges. The provision of general paediatric surgery by appropriately trained general surgeons in DGHs is an important component of the surgical care of children and must be encouraged and preserved.  The Senate of Surgery and the Royal College of Surgeons of England have published clear criteria for this. The same issues apply to surgeons in all specialties where adult surgeons also treat children.

 

On the issue of validation and revalidation (186), whilst it is appropriate to consider the range of procedures that surgeons may undertake, we recommend that clinical outcomes should take priority over a mandatory minimum number of procedures.

 

Emphasis of the importance of training health professionals in skills for communicating with parents and with children is welcomed (190). This has been recognised already by the inclusion of communication skills in some training curricula.

 

Footnotes:

1. The Report does not comment on the expectations of the NHS, and what happens when clinicians give their best, and that best is judged by some at a future point in time to be not good enough.

 

2. Although not within the remit of this Report, it is to be hoped that these proposals can also be applied to the provision of healthcare for children treated in the private sector (non NHS patients).

 

 

Professor David Lloyd                                                                                       

President

The British Association of Paediatric Surgeons.                        24 September 2001