Parents may find these links to support organisations helpful
HMDSN is the Hirschsprung’s & Motility Disorders Support Network (HMDSN). It is an organization that makes it possible for ordinary people and families, whose children suffer from Hirschsprung’s Disease and other Gastrointestinal motility disorders to support each other.
Shine is a registered charity supporting families and individuals affected by spina bifida and hydrocephalus.
Tofs is a registered charity dedicated to providing emotional support to families of children born with Tracheo-oesophageal fistula, Oesophageal atresia, or associated conditions.
The ERIC website provides information and support on childhood bedwetting, daytime wetting, constipation and soiling to children, young people, parents and professionals.
This website contains certified ‘digestible’ information for parents and carers on kidney conditions that affect children.