The ICLMR aims to prospectively document the clinical features, treatment received and outcome of children born with a congenital lung malformation. Cases diagnosed at any stage can be submitted to the registry including prenatally diagnosed cases and those diagnosed after birth. The registry is simply capturing all aspects of these case – there is no requirement for any specific treatment. The aim is that by collecting a large volume of cases across many centres worldwide we can understand more about this rare group of conditions and how to best treat them.
The registry is now live and we are very keen for as many centres as possible to participate.
The study is led by Mike Stanton in Southampton. [email protected]
The study website is www.iclmr.org